August 23, 2013
So do not fear, for I am with you
Do not be dismayed, for I am your God
I will strengthen you and help you
I will uphold you with my righteous right hand
|With Penguin Cold Cap before chemo|
You may be wondering what a "Penguin Cold Cap" is, and you wouldn't be alone!
Let me try to explain. The chemo that Madeleine is having typically results in complete hair loss. When she made the decision to do this treatment, that was one of the side effects that she planned on.
But then, she met another patient, Jackie, at NIH (who was a few weeks ahead of her in the same treatment) who had researched and then used these Penguin Cold Caps during treatment and had not lost her hair. Jackie, along with her husband and sister, helped make it possible for Madeleine to have the same opportunity.
|With the last Penguin Cap - wearing gloves to assist|
Deanne had to arrange for lots of dry ice to be on hand in order to keep the 8 rotated Penguin Caps constantly at the right temperature (thank you, Jamie - a local, previous TIL patient). She also needed to have some large ice chests, and an infra-red thermometer to check the temperature before applying each cap (thank you, Jackie!). And finally, Deanne had to have lots of organization and concentration in order to change the Penguin Caps every 20-30 minutes for about 4+ hours. Both Deanne and Madeleine were exhausted by the end of the night...but happy that they were able to do it.
Madeleine says that there was an initial "brain freeze" but that you adjust after a while. In a way, having the Penguin caps helped give her a short-term goal (and lots of distraction), and those of you who know Madeleine, know that she loves to have a goal.
Everybody is resting up today, getting ready for the same process tonight. Thanks for your prayers!